Donate to Research

There are more than 30 million Americans affected by one or more of the nearly 7,000 rare diseases. Support NORD with a tax-deductible donation today. Give to empower the rare disease community.

Read NORD’s research grant policy to learn how your donation supports innovation and find out more about setting-up a fund for your disease if one does not currently exist. If you are interested in setting up a fund, please call us at (617) 249-7300 or email us at: donate@rarediseases.org.

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The National Organization for Rare Disorders is a 501(c)(3) organization. Gifts are deductible to the full extent allowable under IRS regulations. Your donation helps NORD serve the 30 million Americans who, because their diseases are rare, might otherwise be forgotten. NORD relies on the contributions of grateful patients, families, and others who care about the medically disenfranchised. With your help, NORD will continue to provide accurate, reliable information and will be a strong voice in advocating for needed research and improved treatments.